Speak About Symptoms for Rare Disease Day 2023
Author: Voices of MPN
February 28, 2023 is Rare Disease Day, which gives people living with the rare, chronic blood cancers called myeloproliferative neoplasms (MPNs) a timely reason to raise awareness of MPNs.
This year, Voices of MPN is reminding people that it’s important to be open and honest with their healthcare team about their MPN symptoms. Telling Healthcare Professionals you’re fine may seem easy, but they need to know how the physical and emotional challenges associated with your disease affect your daily routines, activity levels, and overall quality of life.
SPEAKING OF SYMPTOMS
It’s essential to be honest about your symptoms and speak up about them at every MPN visit. Remember MPNs are progressive conditions, which means they can change or get worse over time.
Empower your ongoing care by monitoring your symptoms and regularly communicating to your Healthcare Professionals the impact those symptoms have on your life. This may help your care team recognize when something isn’t right.
HOW YOU CAN RAISE AWARENESS FOR MPNs
Join a Voices of MPN Rare Disease Day Facebook Live
Hear directly from Incyte Oncology Clinical Nurse Educators during a live event. Mark your calendar for March 2 at 7p.m. EST and prepare to ask questions, learn about MPN-related topics, and more!
Honor Your MPN Hero—Starting Today!
The 2023 MPN Heroes nominations are now open! Learn more about the MPN Heroes® Recognition Program and honor your own MPN Hero.
Download the Voices of MPN Mobile Tracker App
Start tracking your MPN symptoms now! Communicating how you feel is a key part of a productive visit with your care team. Download the Voices of MPN Mobile Tracker App so you can track symptoms on the go.