What Tools Can I Use to Take an Active Role in My Well-Being?
When you have a rare condition like essential thrombocythemia (ET), it is vital to play an active role in your care. Your Healthcare Professional will monitor your ET and how it affects you and can also help you cope with stress and challenges that may arise.
Utilizing various ET support tools and resources can help you make the most of your time with your Healthcare Professional. Before your next appointment, consider writing down any questions ahead of time and bring them with you. The list below will help you get started.
- How often do you want to see me?
- How often will I need to be monitored?
- What types of tests or procedures will I need to have?
- What do you feel is the best course of action for me?
- Should I see a specialist?
- Can you help me find a specialist?
- Why do I feel full so soon after I start eating?
- What foods should I try if I can’t eat much?
- What type of exercise will help me stay active?
- What is the best thing to do when I feel weak or tired?
- What information do you want me to keep track of?
- What symptoms or problems do you want to know about right away?
- What are potential complications of my condition?
- What should I do if I start feeling overwhelmed by my ET?
Be sure to work with your Healthcare Professional to set up a wellness plan that is right for you.
Explore more commonly asked questions about ET.
How Can I Find Support and Resources for Living With ET?
The following is a list of helpful resources that you can use to inform your journey with ET.
VIEW FACTS ABOUT ESSENTIAL THROMBOCYTHEMIA
VIEW ESSENTIAL THROMBOCYTHEMIA BACKGROUND INFORMATION
TRACKING ESSENTIAL THROMBOCYTHEMIA INFOGRAPHIC
How Can I Connect With the ET Community?
For people living with ET, it’s important to know that you’re not alone—and that there is a community of support within your reach. Connecting with other people who have been through similar experiences and managed similar challenges can make a meaningful difference on your journey with ET.
Through a variety of programs and resources, the Voices of MPN website links people with ET to disease information, educational programs, and community activities while inviting people to share their stories and spread disease awareness.