Keeping Your MPN on Track: Three Tools That Can Help
Author: Voices of MPN
Although we all have our ups and downs from day to day, seemingly insignificant changes in how you feel can have greater significance for someone living with a myeloproliferative neoplasm (MPN) such as polycythemia vera (PV), essential thrombocythemia (ET), or myelofibrosis (MF). That’s because these rare, chronic blood cancers are progressive conditions, which means they may worsen over time. That’s why tracking your disease can be an important part of taking an active role in your care. Keeping an ongoing record of how your MPN may be changing over time can reveal important insights about your disease status, which can help ensure that you are having the right discussions with your Healthcare Professional about your health.
Helping to keep your MPN on track
To help make your tracking efforts easier, Voices of MPN has developed three digital tracking tools designed for patients with PV, ET, and MF. These unique resources have been developed to help you regularly monitor your MPN symptoms, key blood cell counts, and specific medical procedures. Your results can be tracked over time and shared with your Healthcare Professional.
With the PV, ET, and MF Tracker Tools you’ll be able to track potentially important trends in your health, which can inform the conversations you have with your Healthcare Professional. In addition, you’ll be able to:
- Rate the severity of your most common MPN symptoms—and track those that may be new, improving, or worsening over time
- Continuously track key blood cell counts—and identify consistent changes or trends in your levels
- Track the dates and frequency of certain medical procedures—and identify patterns that indicate that it may be time to talk to your Healthcare Professional about your current MPN management approach
Because PV, ET, and MF affect everyone differently, it's important to get into the habit of regularly tracking your condition. Using one of the MPN Tracker Tools is a helpful way to do just that. Simply click on the link below, select your individual disease state (PV, ET, or MF), and you’ll gain access to a unique tracking experience designed specifically for your condition. Be sure to get into the habit of sharing your tracker results with your Healthcare Professional, as he or she may spot certain health trends that could be missed or overlooked.
Remember, when you identify any changes or trends in your health, it’s important to share that information with your Healthcare Professional and discuss any impact it may have on your current management plan. The more you recognize—and talk about—how your condition is changing, the better you and your Healthcare Professional can keep your MPN journey on track with what’s right for you.
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