The Voices of MPN Blog

Join the MPN Community blog post

Join the MPN Community blog post

Join the MPN Community blog post

Join the MPN Community and Track Your Symptoms

Author: Voices of MPN

Learn how to get involved in the MPN community to connect with other people with MPNs and find tools that help you advocate for yourself and your condition.

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On Rare Disease Day 2025, Shine a Spotlight on MPN Symptoms

Author: Voices of MPN

On the last day of February, Rare Disease Day is observed globally to raise awareness for rare diseases and create a platform for those within the community.

Female MPN expert sitting in front of a laptop linking to the Blood Cancer Awareness blog

Identifying and Tracking Symptoms This Blood Cancer Awareness Month

Author: Voices of MPN

Get involved this September by learning how to track your symptoms and which resources are available to help you. MPN expert Lindsey Lyle shares an important message.

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Join the MPN Community blog post

Join the MPN Community blog post

Join the MPN Community blog post

Join the MPN Community and Track Your Symptoms

Author: Voices of MPN

On Rare Disease Day 2025, Shine a Spotlight on MPN Symptoms

Author: Voices of MPN

Female MPN expert linking to 2024 Blood Cancer Awareness blog

Female MPN expert linking to 2024 Blood Cancer Awareness blog

Female MPN expert linking to 2024 Blood Cancer Awareness blog

Start Identifying and Tracking Your Symptoms This Blood Cancer Awareness Month

Author: Voices of MPN

Identifying Possible Signs of MPN Progression blog post

Identifying Possible Signs of MPN Progression blog post

Identifying Possible Signs of MPN Progression blog post

Identifying Possible Signs of MPN Progression

Author: Voices of MPN

Why your Mental Health Matters blog post

Why your Mental Health Matters blog post

Why your Mental Health Matters blog post

Why Your Mental Health Matters

Author: Voices of MPN

See What You Can Do With The Updated MPN Tracker Tools

See What You Can Do With The Updated MPN Tracker Tools

See What You Can Do With The Updated MPN Tracker Tools

See What You Can Do With The Updated MPN Tracker Tools

Author: Voices of MPN

Connecting on Their MPN Journeys: Louise and Laurie

Connecting on Their MPN Journeys: Louise and Laurie

Connecting on Their MPN Journeys: Louise and Laurie

Connecting on Their MPN Journeys: Louise and Laurie

Author: Voices of MPN

The Importance of Effective MPN Communication

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Communication_Splitscreen

The Importance of Effective MPN Communication

Author: Voices of MPN

Meet 3 MPN Peers from CHAMPN Connections

Meet 3 MPN Peers from CHAMPN Connections

Meet 3 MPN Peers from CHAMPN Connections

Meet 3 MPN Peers from CHAMPN Connections

Author: Voices of MPN

Learning the ABCs of Your CBC

Learning the ABCs of Your CBC

Learning the ABCs of Your CBC

Learning the ABCs of Your CBC

Author: Voices of MPN

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The Importance of Scheduling—AND Keeping—Your MPN Healthcare Appointments

Author: Voices of MPN

Making a Meaningful MPN connection: Matt and Josh

Making a Meaningful MPN connection: Matt and Josh

Making a Meaningful MPN connection: Matt and Josh

Making a Meaningful MPN Connection: Matt and Josh

Author: Voices of MPN

Inside MPNs: What’s Happening in Your Body?

Inside MPNs: What’s Happening in Your Body?

Inside MPNs: What’s Happening in Your Body?

Inside MPNs: What’s Happening in Your Body?

Author: Voices of MPN

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Food for Thought: Anti-Inflammatory Eating

Author: Robyn M. Scherber, MD, MPH

Make the Most of Your Conversations With Tips and Strategies From Strengthening Your Voice Cards

Make the Most of Your Conversations With Tips and Strategies From Strengthening Your Voice Cards

Make the Most of Your Conversations With Tips and Strategies From Strengthening Your Voice Cards

Tips to Help You Make the Most of Your Conversations

Author: Voices of MPN

Ten Reasons to Join the CHAMPN Connections Program

Ten Reasons to Join the CHAMPN Connections Program

Ten Reasons to Join the CHAMPN Connections Program

Ten Reasons to Join the CHAMPN Connections Program

Author: Voices of MPN

Beyond the Basics: Information Every Patient With an MPN Should Know

Beyond the Basics: Information Every Patient With an MPN Should Know

Beyond the Basics: Information Every Patient With an MPN Should Know

Beyond the Basics: Information Every Patient With an MPN Should Know

Author: Voices of MPN

Keeping Up With the MPN Community From Home

Keeping Up With the MPN Community From Home

Keeping Up With the MPN Community From Home

Keeping Up With the MPN Community From Home

Author: Voices of MPN

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Turning Up the Volume on MPN Education

Author: Voices of MPN

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What Every Patient With an MPN Should Know About the Spleen

Author: Voices of MPN

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Achieving Mindfulness With Your MPN

Author: Voices of MPN

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Newly Diagnosed: Advice From People Who’ve Been There

Author: Voices of MPN

Image of Denise T, Community Voice Champion and blog post author who tells of her journey with essential thrombocythemia

Image of Denise T, Community Voice Champion and blog post author who tells of her journey with essential thrombocythemia

Image of Denise T, Community Voice Champion and blog post author who tells of her journey with essential thrombocythemia

Denise: Investing in a Positive MPN Perspective: My MPN Journey

Author: Denise T.

Susan: Living a Life Well-Lived: My Essential Thrombocythemia Journey

Susan: Living a Life Well-Lived: My Essential Thrombocythemia Journey

Susan: Living a Life Well-Lived: My Essential Thrombocythemia Journey

Susan: Living a Life Well-Lived: My Essential Thrombocythemia Journey

Author: Susan W.

Learning about bobs myelofibrosis disease

Learning about bobs myelofibrosis disease

Learning about bobs myelofibrosis disease

Bob: What I Learned on My Journey With Myelofibrosis

Author: Bob W.

MPN Symptoms: What Your Healthcare Team Needs to Know

MPN Symptoms: What Your Healthcare Team Needs to Know

MPN Symptoms: What Your Healthcare Team Needs to Know

MPN Symptoms: What Your Healthcare Team Needs to Know

Author: Amber Essenmacher, PA-C, MMS

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What to Expect at an MPN Patient Education Event

Author: Voices of MPN

Image of Matt W, Community Voice Champion

Image of Matt W, Community Voice Champion

Image of Matt W, Community Voice Champion

My Experience With Polycythemia Vera and Cardiovascular Risk

Author: Matt W.

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"Something So Rare" Documentary Sheds Light on Life With an MPN

Author: Voices of MPN

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Image of a young woman outside

Image of a young woman outside

Taja Connects With the MPN Community for the First Time

Author: Voices of MPN

Image of a man looking down with the sun behind him

Image of a man looking down with the sun behind him

Image of a man looking down with the sun behind him

Nick Grapples With His MPN Diagnosis

Author: Voices of MPN

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In Sickness and in Health: When Your Caregiver Is Your Life Partner

Author: Voices of MPN

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Finding Strength in My Myelofibrosis Diagnosis

Author: Anand M.

Image of a woman sitting on an exam table listening to a healthcare professional

Image of a woman sitting on an exam table listening to a healthcare professional

Image of a woman sitting on an exam table listening to a healthcare professional

Keeping Your MPN on Track: Three Tools That Can Help

Author: Voices of MPN

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Track, Trend, Talk: Three Important Ways to Take an Active Role in Your Care

Author: Voices of MPN

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Image of a woman standing on a pier looking at the ocean

Image of a woman standing on a pier looking at the ocean

Barbara Reveals Hidden Struggles in a Film About the Impact of MPNs

Author: Voices of MPN

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What I Experienced at an MPN Patient Meeting: 3 Stories

Author: Voices of MPN

Be Your Own Advocate

Be Your Own Advocate

Be Your Own Advocate

Be Your Own Advocate

Author: Alisa R.

Colorful graphic of 4 people sitting in a healthcare professionals waiting room

Colorful graphic of 4 people sitting in a healthcare professionals waiting room

Colorful graphic of 4 people sitting in a healthcare professionals waiting room

Recognizing PV Symptoms

Author: Voices of MPN

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Image of the lower half of a person pulling luggage in an airport-type setting

Image of the lower half of a person pulling luggage in an airport-type setting

Travel Tips for People With MPNs

Author: Voices of MPN

Image of an elderly couple sitting in front of a laptop that has the PV Tracker Tool on the screen

Image of an elderly couple sitting in front of a laptop that has the PV Tracker Tool on the screen

Image of an elderly couple sitting in front of a laptop that has the PV Tracker Tool on the screen

The PV Tracker Tool: Taking Charge of Your Polycythemia Vera

Author: Voices of MPN

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Image of a healthcare professional and a man looking at a tablet

Image of a healthcare professional and a man looking at a tablet

When Polycythemia Vera Becomes Myelofibrosis

Author: Voices of MPN

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Image of a man sitting on a sofa looking at something on a tablet

Image of a man sitting on a sofa looking at something on a tablet

What Is Myelofibrosis?

Author: Voices of MPN

Image of a woman and a healthcare professional holding a tablet and talking

Image of a woman and a healthcare professional holding a tablet and talking

Image of a woman and a healthcare professional holding a tablet and talking

Get Facts on Essential Thrombocythemia

Author: Voices of MPN

Image of a hand with a ring and text on the image saying – MYELOPROLIFERATIVE NEOPLASMS LANDMARK SURVEY

Image of a hand with a ring and text on the image saying – MYELOPROLIFERATIVE NEOPLASMS LANDMARK SURVEY

Image of a hand with a ring and text on the image saying – MYELOPROLIFERATIVE NEOPLASMS LANDMARK SURVEY

MPN Landmark Survey Reveals Insights About Living With MPNs

Author: Voices of MPN

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Myelofibrosis and Your Spleen

Author: Voices of MPN

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What Is Polycythemia Vera? A Beginner’s Guide

Author: Voices of MPN

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Why Making Connections Counts

Author: Voices of MPN

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Image Grandparent with two children sitting with them

Image Grandparent with two children sitting with them

7 Steps to Managing the Stress of an MPN

Author: Voices of MPN

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Tips for Managing MPN-Related Appetite Loss

Author: Voices of MPN

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Three Ways to Manage Your Energy Levels When You Have Myelofibrosis

Author: Voices of MPN

Track Your MPN Symptoms