Discover how she identified her PV State of Mine.
Get a free ribbon to raise awareness about ET
Learn about her experiences with MF
If you would like to become a Community Voice Champion, please click here to register.
Learn about your disease by viewing the
Communities of people affected by myeloproliferative neoplasms are available to provide support. Reach out to one of these resources today.
Incyte Corporation is not affiliated with these organizations but has provided funding for some of their educational programs. This is not a complete list of organizations within the MPN community.
Cancer Support Community ►
Facebook: Myelofibrosis Sharing Caring and Support ►
Facebook Private Myelofibrosis Support Group ►
Leukemia & Lymphoma Society ►
MPD Chat ►
MPN Advocacy & Education International ►
MPN Education Foundation ►
MPNforum Magazine ►
MPN Research Foundation ►
National Organization of Rare Disorders (NORD) ►
Oncology Nursing Society ►
Patients Like Me ►
Patient Power ►
See below for information and educational resources specific to MPNs provided by the organizations listed on this page:
As a person affected by MPNs, you are likely all too aware of the challenges that living with a rare condition presents. You may wonder: What can I do to bring more attention to these conditions?
Raise your voice. Unite with others who are affected by MPNs and speak out so that your voices are heard and your stories are shared. Raising your voice begins by taking action, and we have the tools and resources to help you act now.
Wear a bracelet. Share a ribbon. And come together to raise awareness of MPNs. Join together with other people who are affected by MPNs by wearing a PV, ET, or MF bracelet or an MPN ribbon. Register to order and start promoting awareness. For every bracelet ordered by a friend or family member, Incyte Corporation will donate $1.00 to the MPN Research Foundation, a 501(c)(3) charity, up to $5.00 per order.
The Raise Your Voice in Support of Myeloproliferative Neoplasm (MPN) Awareness Toolkit is available to help you take action to spread awareness of MPNs. The Toolkit, in conjunction with the MPN Coalition, has been designed to give you the resources you need to host fun, practical activities that can help you become an activist in MPN care. These resources are meant to inspire you to unite voices through simple, fun activities throughout the year that help to educate others in your community about MPNs, advocate for better care and support and more treatment options, and connect with other patients diagnosed with an MPN and caregivers to form an MPN community.
Get creative! Have fun! Download your copy of the Raise Your Voice Toolkit.
Show your support and promote MPN Awareness! Share a badge through social media with your friends and family.
This resource is intended for educational use by MPN advocacy groups.
This slide deck can also help Healthcare Professionals provide patients with information about the three main Philadelphia chromosome–negative MPNs—polycythemia vera (PV), essential thrombocythemia (ET), and myelofibrosis (MF). Topics include how patients may be affected by MPNs, ways patients can take care of themselves, and resources available to the MPN community.
Share your MPN experience with others. Post your story on the Wall of Voices.
Share the story of how your MPN Hero makes a difference.
This site is for US residents 18 years of age or older. The information on this website is not a substitute for a visit or a consultation with a healthcare provider. Remember that a healthcare provider is the single best source of medical advice regarding your health. Please consult a healthcare provider if you have any questions. By clicking third-party links, you are leaving an Incyte website and going to an external, entirely independent third-party website. Incyte provides these links as a service to its website visitors and users and takes no responsibility for any information presented on such sites or for your use of or access to such sites.
MPN Heroes and Voices of MPN are registered trademarks of Incyte Corporation.
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