What Tools Can Help Me Take an Active Role in My Well-Being?

When you have a chronic condition like myelofibrosis (MF), it is vital to play an active role in your care. Your Healthcare Professional will monitor your MF and how it affects you and can also help you cope with stress and challenges that may arise.

To make the most of your time with your Healthcare Professional, write down your questions ahead of time and bring them with you. The list below will help you get started.

  • How often do you want to see me?
  • How often will I need to be monitored?
  • What types of tests or procedures will I need to have?
  • What do you feel is the best course of action for me?
  • Should I see a specialist?
  • Can you help me find a specialist?
  • Why do I feel full so soon after I start eating?
  • What foods should I try if I can’t eat much?
  • What type of exercise will help me stay active?
  • What is the best thing to do when I feel weak or tired?
  • What information do you want me to keep track of?
  • What symptoms or problems do you want to know about right away?
  • What are potential complications of my condition?
  • What should I do if I start feeling overwhelmed by my MF?

Since MF affects each person differently, be sure to work with your Healthcare Professional to set up a wellness plan that is right for you. Explore more commonly asked questions about MF.

How Can I Find Support and Resources for Living With MF?

The following is a list of informative resources that can help empower your journey with MF.

VIEW MYELOFIBROSIS BACKGROUND INFORMATION

Graphic of the Myelofibrosis Background Information PDF Graphic of the Myelofibrosis Background Information PDF Download buttonDOWNLOAD PDF

TRACKING MF INFOGRAPHIC

Image of the Myelofibrosis Track, Trend, Talk Infographic Image of the Myelofibrosis Track, Trend, Talk Infographic Download buttonDOWNLOAD PDF
Podcast Icon

Receive Updates on Myelofibrosis Get an MF awareness bracelet and educational resources when you register

How Can I Connect With the MF Community?

For people living with MF, it’s important to know that you’re not alone—and that there is a community of support within your reach. Connecting with other people who have been through similar experiences and managed similar challenges can make a meaningful difference on your journey with MF.

Through a variety of programs and resources, the Voices of MPN links people with MF to disease information, educational programs, and community activities while inviting people to share their stories and spread disease awareness.

Explore community tools and resources
CHAMPN Icon

Connect One-on-One With Members of the MF Community: Register for CHAMPN Connections

View MF Patient Videos

"Be Your Own Advocate"
– Laura, MF Patient

Empower Yourself to be Active.
– Louise, MF Patient

"One of the blessings of having myelofibrosis…is it makes you appreciate the time you do have."
– David, MF Patient