THE MPN HEROES® RECOGNITION PROGRAM
Celebrate the MPN Hero in Your Life!
The MPN Heroes Recognition Program honors the people and organizations that have dedicated themselves to improving the lives of people with MPNs. The program focuses on the three "classical" MPNs—or what are known as Philadelphia chromosome–negative MPNs.
Created in the spirit of fostering community, the program recognizes patients, Healthcare Professionals, caregivers, advocates, and organizations that contribute to bringing understanding, compassion, and strength to the MPN community.
Incyte Corporation and CURE magazine sponsor the MPN Heroes Program. Our goal is to create as many opportunities as possible for people with MPNs to be heard and to be supported, so more solutions and treatment options will emerge.
Thank you to all who participated in the 2015 MPN Heroes recognition program by nominating someone who has made a difference in MPN care. Your hero may be any of the following:
- Patient whose strength has inspired you
- Caregiver who has consistently offered you support and reassurance
- Healthcare Professional who has listened to you and treated you with compassion
- Organization or institution dedicated to improving MPN care and support
MPN HEROES CELEBRATION IN SAN DIEGO
The 2016 MPN Heroes Celebration Event, hosted by CURE Media Group, will take place in San Diego, CA on December 2, 2016.
MPN Heroes is a program sponsored by Incyte Corporation and CURE magazine.
2016 Steering Committee
An independent steering committee reviews the nominations and selects the recipients for recognition. The committee is made up of:
Diagnosed with essential thrombocythemia in 2014, Rebecca has taken a special interest in MPN education and awareness. She is currently an Oncology Nurse Educator for RxCrossroads/Merck. In her previous roles at The University of Kansas Cancer Center, she was able to provide education and support to MPN patients, caregivers, and nurses providing hands-on care to these patients. Rebecca was recognized for her dedication to that education and support in 2015 with an MPN Heroes Award. Most recently she was a resource for an article that ran in Oncology Nursing News, “Diagnosing and Treating Myeloproliferative Neoplasms.”
Emily is an ET patient, blogger, and patient advocate. She was diagnosed with ET at the age of 18. She has chronicled her treatments in her blog, linampn.com, with her motto, "You are your own best advocate. If you don't stand up for yourself, who will?" She is constantly encouraging patients to learn as much as they can about their diagnosis, and to participate as fully as possible in their healthcare teams.
Over the last several years, Emily has participated in several events promoting education, awareness, and funding for the MPN community. Some of these events include: One Voice Against Cancer in Washington, D.C., during which she spoke to Congressional representatives, Patient Power's "Living Well With MPNs" series, the National Organization for Rare Diseases MPN Spotlight event, and the Women and MPNs event put on by the MPN Advocacy and Education International group. She also volunteers as a mentor with Imerman Angels.
Emily lives in St. Louis, MO with her muses: her husband Michael, AKA "M", and their two dogs.
Dr. Susan Leclair is chancellor professor emerita at University of Massachusetts Dartmouth. She has been a lab professional for more than 40 years and her clinical interests include clinical hematology and oncology, human genetics, and bioethics. Dr. Leclair currently moderates Patient Power® Town Hall meetings for the CLL, MPN, Lung Cancer, and Melanoma communities. In addition, she is writer and presenter for Patient Power’s “Improving Understanding of Patients and their Laboratory Tests” program.
Dr. Leclair is also third term Editor-in-Chief for the journal Clinical Laboratory Science. In 1999, Dr. Leclair created the American Society for Clinical Laboratory Science Consumer Information Response team, which now consists of approximately 50 clinical laboratory scientists, across the major disciplines and from multiple professional organizations. The team handles questions from patients, healthcare practitioners, and caregivers around the world about how to interpret their laboratory test findings. She has provided similar services to people on the ACOR.org MPN-net, CLL, and CLL/SLL list serves since 1994.
Dr. Ross Levine is a physician-scientist focused on researching and treating blood and bone marrow cancers, including acute myeloid leukemia and the chronic myeloproliferative neoplasms polycythemia vera, essential thrombocythemia, and primary myelofibrosis.
Caring for leukemia patients during his residency and fellowship inspired Dr. Levine’s interest in the disease. He saw that while treatments could be quite effective the first go-round, many leukemia patients often relapse. That got him thinking about how he could better understand why leukemia develops and how the community could create new, targeted treatments to improve patient outcomes.
When Dr. Levine is not running his research lab, he treats people with leukemia on an inpatient basis. He does approximately 30 procedures a year, most of which are bone marrow biopsies.
Dr. Levine acknowledges that many patients feel overwhelmed when they are first diagnosed, so he feels it is his responsibility to give them the information they need and to show them that a whole team of experts is available to help them through the process. His hope is that upon meeting him and his team, patients leave feeling empowered and hopeful.
Outside of work, Dr. Levine enjoys spending time with his family, playing tennis and squash, and rooting for the New York Mets!
Marina Peed transferred her career skills in community revitalization to her own physical revitalization when she unknowingly joined the MPN club in 2007. Thanks to an unrelated stem cell donor and numerous blood and platelet donors, Marina is in complete remission from post–polycythemia vera myelofibrosis.
Marina remains active in the MPN community to share hope, humor, and advocacy for the whole patient. She is the administrator of MPNsupport.com, a website of patient-curated resources for people living with MPNs. Marina is also a founder of the MPN Action Network, and a contributing writer to MPNforum, MPN Advocacy & Education International, and other outlets. To help newly diagnosed patients find invaluable patient support resources, Marina is an MPN and SCT patient support volunteer with the Leukemia & Lymphoma Society, Be the Match, Imerman Angels, and the Bone Marrow Foundation.
Marina lives in her empty nest in Georgia with her husband, Robert, and Toula, her therapy rescue-dog. She is grateful to be here, and follows the adventures of her two college kids and abundance of nieces and nephews.
Kathy LaTour, co-founder and editor-at-large of CURE magazine
Diagnosed with invasive breast cancer in 1986, Kathy LaTour had a mastectomy and chemotherapy and has been active in the national survivor community ever since, speaking to survivor, medical, and lay audiences about the need for psychosocial support. Ms. LaTour experienced a second diagnosis of breast cancer resulting in a second mastectomy in fall 2007. Her book, The Breast Cancer Companion, was published by William Morrow and Co. in 1993.
In 2001, she cofounded CURE magazine with Dr. Vinay Jain. Today she is editor-at-large of the publication, which is the largest direct-to-patient cancer magazine in the country. For her writing on cancer she has received numerous awards, including a first place from the Association of Health Care Journalists in 2011 for her article "The Cost of Living", which looked at the late effects of radiation for long-term survivors.
In 2004, she debuted her one-woman show "One Mutant Cell," a humorous and poignant account of her journey through breast cancer, which she has performed more than 50 times for a variety of cancer events around the country.
She served for 4 years on the board of the National Coalition for Cancer Survivorship, and helped found Gilda's Club North Texas, now known as Cancer Support Community North Texas. She was also instrumental in founding The Bridge Breast Network in Dallas, a unique coalition of breast cancer survivors and area Healthcare Professionals who are providing diagnosis and treatment to uninsured women who may have breast cancer.
MPN Heroes Recognition Program 2016 Rules
The MPN Heroes program recognizes dedication to individuals and the MPN community. Individuals or organizations can be nominated in one of two categories. Recipients will be selected by a judging panel's review of nominations for recognition. In Category A, up to four recognition plaques will be given to chosen recipients, and in Category B, up to four monetary donations to nonprofit organizations and societies will be given in recognition of the four recipients recognized in this category. Incyte will make monetary donations to select non-profit 501(c)(3), US-based organizations or societies that improve the lives of individuals with MPNs.
Criteria for nominations in either category are as follows:
- Choose only one category for the nominee to be considered
- Clearly state the MPN (MF, PV, or ET) patient need being addressed
- A completed nomination form must be submitted by September 8, 2016
- The achievements of the organization or individual must be recent (ie, should have taken place within the last 24 months)
- Organizations may submit an entry for their own program, but it must be for one specific activity or program and only one entry per year, and we strongly encourage independent confirmation
- Individuals can be recognized posthumously
- Institutions, organizations, or individuals can be nominated by themselves or by others, but they must be aware of the nomination, and the nomination must be approved by, and compliant with, any institutional rules and guidelines
Criteria: Category A: Commitment to the individual. Recognizing individuals who provide or demonstrate care, guidance, education, or support above and beyond the standard of care for one or more patients with MPNs. Types of work honored include demonstration of individual dedication by a nurse, Healthcare Professional, or caregiver whose contributions to an individual with an MPN had an evident impact.
Criteria: Category B: Commitment to the broader MPN community. Recognizing leadership in developing services or programs addressing the needs of patients with MPNs, families, friends, caregivers, and medical professionals through advancing the science and medical understanding of MPNs, education, awareness, or approaches to care.
Types of work honored could include advocating for better care, outreach to underserved populations, activities at the grassroots level, promoting the patient’s voice, providing MPN community leadership, creating awareness programs, innovative education materials, programs, or events, disease management initiatives, research and science-based programs, media outreach, or campaigns.
- Employees or agents of Incyte, MK&A, or other Incyte vendors and members of their immediate family are not eligible for recognition
- Nominated individuals, institutions, or organizations and the programs or activities nominated must originate and be executed in one or more of the 50 states of the United States, the District of Columbia, or Puerto Rico
- Nominated programs must be independent of purchase, use, and prescribing for any Incyte product
- The following are ineligible for recognition:
- Programs or activities that Incyte provided grants or other funding for directly
- Political lobbying activities
- Medical research or publications that have been funded or directed by Incyte
- Any nominee whose organization or institution does not allow recognition in the manner set forth in this program
- Nominated individuals or organizations must serve or be involved with the myelofibrosis (MF), polycythemia vera (PV), or essential thrombocythemia (ET) communities
- Judging panel reserves the right to exclude nominations of individuals for any perceived conflict of interest
- Individuals or organizations may not be recognized two years in a row or for a length of time agreed upon by the judging panel. Click here to view past Heroes >