Why Fine Is Not Enough

Author: Voices of MPN

When you’re living with or affected by a myeloproliferative neoplasm (MPN), it can be easy to fall into the habit of saying, “I’m fine”—even when MPN symptoms may be affecting your activity levels, emotions, and overall quality of life. But when you don’t speak up about how you really feel, you may miss the opportunity to get the optimal care and support that you need from family, friends, and especially your MPN Healthcare team.

FINE IS NOT ENOUGH FOR YOUR MPN JOURNEY

In an effort to help strengthen self-advocacy within the MPN community, Voices of MPN has launched an important education and awareness campaign focused on improving MPN communication. With a focus on self-awareness and self-expression, the FINE campaign encourages MPN patients and caregivers to speak up—and spell out how they really feel—because fine is not enough.

FINE-TUNE YOUR MPN COMMUNICATION

MPNs are progressive diseases, which means they can change or get worse with time. That’s why it’s important to recognize the physical and emotional impact of your MPN—and to respond, by speaking up and seeking out the support that’s right for you. This can help you take a more active role in your own care and may also lead to more informed conversations with your MPN healthcare team.

Empower yourself to have more effective MPN communication with these helpful tips:

  1. PUT IN THE WORK—Explore the FINE Healthcare Communication Workbook and access a variety of practical, interactive worksheets that can help you have more informed conversations during your MPN healthcare appointments.

    DOWNLOAD WORKBOOK

  2. MAKE A PERSONAL COMMITMENT—If fine is not enough for your MPN journey, make a promise to yourself to have more informed, meaningful conversations about the ongoing impact of your MPN.

    TAKE THE PLEDGE

  3. LISTEN AND JOIN IN—Hear from real patients and caregivers who are already taking action to share why fine was not enough for their MPN journeys.

    WATCH VIDEOS

  4. KNOW YOUR RIGHTS—Read the MPN Patient Bill of Rights and learn how to become a more powerful advocate for your own care.

    DOWNLOAD BILL OF RIGHTS

To learn more, visit FineIsNotEnough.com.

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