What Is ET?

Essential thrombocythemia (ET) is a rare, chronic blood cancer in which a person’s bone marrow makes too many blood platelets (also known as thrombocytes). About half of people with ET have a mutation—or change—in a certain gene in the body.

Platelets travel through the body’s blood vessels. When a person damages a blood vessel—through a cut, for instance—platelets stick together to form clots and stop the bleeding. In people with ET, the bone marrow makes too many platelets, making it hard for the blood to flow. Unnecessary clots may form, and/or bleeding may increase.

Clotting can lead to serious health problems, like heart attack or stroke.

Learn what causes ET

Image of Marilyn an MPN patient

I had been living with a myeloproliferative neoplasm (MPN) called essential thrombocythemia (ET)…I suspected that my condition was changing... –Marilyn, MPN patient

How Common Is ET?

Approximately 71,000 to 88,000 people in the United States have ET. ET is most common in adults older than 50 years of age. It is more common in women than men.

Graphic image of the United States with text that says – ABOUT 71k-88k PEOPLE IN THE U.S. HAVE ET Graphic image of the United States with text that says – ABOUT 71k-88k PEOPLE IN THE U.S. HAVE ET

How Is This Condition Managed?

Management of ET depends on many factors. Healthcare Professionals consider patients’ risk of blood clots or bleeding, age, and other cardiovascular risks. Management strategies may include regular checkups, medication to reduce platelet counts, or a procedure to lower platelet counts.

What Is the Prognosis?

Each individual journey with ET is unique, and how it may progress or transform over time can vary from person to person. In many cases, people can live with this condition for a long time. However, careful medical supervision can help prevent or treat any possible complications, specifically those related to blood clots (thrombosis).

The median survival for people with this condition is near normal. However, in some cases ET can transform into another MPN.

Your specific medical situation should be evaluated by your Healthcare Professional, who is the best source of information about life expectancy with ET.

Understand Your ET State of Mine

As you work with your Healthcare Professional to understand and assess your condition, it’s important to be aware of how you feel and how ET affects your daily life. This can help you identify your ET State of Mine—or where you are on your journey with ET.

Evaluating your ET and understanding your ET State of Mine may help you recognize when something isn’t right. This can empower you to talk to your Healthcare Professional about how essential thrombocythemia is affecting you and how it’s changing over time so that you can work together in managing your condition.

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