What Are the Signs and Symptoms of ET?

Many people with essential thrombocythemia (ET) have no symptoms. They may not know they have the condition until it is diagnosed after a routine lab exam, or they develop a blood clot.

Clots caused by this condition most often happen in the brain, hands, and feet.

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Symptoms of ET depend on where the clot forms. They include

  • Headache
  • Dizziness or light-headedness
  • Chest pain
  • Weakness
  • Fainting
  • Vision changes that eventually go away
  • Numbness or tingling in the hands and feet
  • Redness, throbbing, and burning pain in the hands and feet
  • Mildly enlarged spleen
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I’ve been living with a myeloproliferative neoplasm (or MPN) for 39 years—although you wouldn’t know it by looking at me. –Denise, Community Voice Champion

Why Is It Important to Track ET Symptoms?

Because ET is a progressive condition, it has the potential to change over time. That means that some of the signs and symptoms may change as well. This is why it’s important to take an active role in monitoring your condition over time by tracking your ET on a regular basis.

Careful symptom tracking provides a number of valuable insights. Not only does it help identify trends within your health, but it can also help you and your Healthcare Professional better understand how to manage and adjust your care over time.

It is important to keep track of any symptoms you have, even if you are not sure they are related to your condition. Don’t assume that any symptom is too minor or not worth recording. Tracking and talking to your Healthcare Professional about your symptoms helps you both:

  • Understand how ET is affecting you
  • Follow how your ET is changing over time
  • Discuss options for managing your ET and its symptoms

Remember, these insights will help your Healthcare Professional understand what’s happening with your condition over time—and that can help ensure that your ET management approach is the right one for you.

Watch as physician assistant Amber Essenmacher reviews important topics that can help you talk with your Healthcare Professional about your ET.

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