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When you’re living with a rare, chronic blood cancer like polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF), connecting with others about your experience may not always be easy. Perhaps you’re uncomfortable with the idea of “burdening” friends and family with your struggles, or maybe you simply don’t like being the center of attention with the focus on you and your condition. Whatever the case may be, it’s important to know that you’re not alone—and that there is a community of support within your reach.
Individuals who are impacted by these myeloproliferative neoplasms (MPNs)—including patients, caregivers, family, and friends—may lack access to the resources they need to understand their condition. This is why it is so important to raise your voice in support of MPN awareness. Sometimes, a few simple connections can help you discover more information to empower you to take an active role in your health and well-being.
Here are some suggestions to help you get started:
Raising your voice begins with taking action—even if that means starting with something small, like making one meaningful connection. Gather information for yourself, your friends and family, so that you can become partners in your healthcare decision-making. Gain strength by connecting with others who are affected by MPNs so that your voices are heard and your stories are shared. Even if you only reach out to one other person, it can make a powerful difference. Remember, every connection counts! And you can start raising MPN awareness one connection at a time.
SHARE YOUR VOICE
Sign up for education and support materials to learn more about myeloproliferative neoplasms (MPNs).
Share your MPN experience with others. Post your story on the Wall of Voices.
This site is for US residents 18 years of age or older. The information on this website is not a substitute for a visit or a consultation with a healthcare provider. Remember that a healthcare provider is the single best source of medical advice regarding your health. Please consult a healthcare provider if you have any questions. By clicking third-party links, you are leaving an Incyte website and going to an external, entirely independent third-party website. Incyte provides these links as a service to its website visitors and users and takes no responsibility for any information presented on such sites or for your use of or access to such sites.
MPN Heroes and Voices of MPN are registered trademarks of Incyte Corporation.
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