MPN LANDMARK SURVEY REVEALS INSIGHTS ABOUT LIVING WITH MPNS
Living with a rare disease such as a myeloproliferative neoplasm (MPN) can be isolating. You might expect that friends, family, or coworkers may not understand the day-to-day challenges of living with an MPN. Do you know, however, that a survey of patients with MPNs and Healthcare Professionals (HCPs) revealed gaps in the way patients and HCPs view the MPN patient experience?
The MPN Landmark Survey* is a large-scale analysis of patients with MPNs and HCPs who treat these rare, chronic blood cancers (813 patients; 457 hematologist/oncologists). The survey focused on the three "classic" MPNs–myelofibrosis (MF), polycythemia vera (PV), and essential thrombocythemia (ET).
The MPN Landmark Survey was fielded to understand the gaps between patient and HCP perceptions about patient disease management. It was also designed to help identify areas in which patients and HCPs could improve their interactions. The survey findings also highlight the impact that MPN symptoms may have on quality of life, everyday activities, and work productivity. The results from the study provide new information that validates previous findings about the effects of MPNs. It’s important to explore the differences in perception reported in the survey between patients and HCPs to advance the understanding and treatment of MPNs.
If you or a loved one are living with an MPN, the following resources may help you better communicate with your HCP about the impact your MPN has on you. Taking the initiative to clearly communicate with your HCP may help you better understand your disease and encourage you to take a more active role in your care.