RAISING MPN AWARENESS ONE CONNECTION AT A TIME

RAISING MPN AWARENESS
ONE CONNECTION AT A TIME

 

CELEBRATE NURSES DAY ON MAY 6

Author: Voices Of MPN

National Nurses Day is Saturday, May 6, 2017. It’s an ideal time to recognize the important role nurses play in helping patients manage rare, chronic blood cancers such as myeloproliferative neoplasms (MPNs)

Nurses Day raises awareness of nurses’ significant contributions to healthcare teams that diagnose, manage, and treat patients.

People living with MPNs such as polycythemia vera (PV), myelofibrosis (MF), or essential thrombocythemia (ET) are often involved with a healthcare team that specializes in managing blood cancers. Team members can include hematologist-oncologists, oncology-certified nurses (OCN®), physician assistants, nurse practitioners, and allied health professionals such as social workers. But as anyone who lives with a chronic disease knows, nurses are instrumental in providing continuity of care—and so much more.

Education, Coordination, Compassion

Nurses caring for MPN patients are often on the front lines of disease education. In the United States, MPNs are considered rare diseases. In other words, they affect less than 200,000 people in the United States. Patients newly diagnosed with PV, MF, or ET may not be familiar with their disease. As a result, they may feel confused, afraid, or alone.

Nurses specializing in the care of patients with MPNs are likely to meet patients when they are most in need of information. Nurses can talk with patients about their disease to help them better understand their specific type of blood cancer and to help them make more informed decisions about their health care. In practical terms, nurses help patients understand what an MPN is, explain that MPNs can affect each person differently, and describe MPN management options with continued support along the way.

Nurses can play a key role in patient empowerment by informing patients about the importance of being their own advocates. Depending on the way various healthcare teams split duties and collaborate on patient care, nurses may also:

  • Coordinate sharing of patient information to the rest of the healthcare team
  • Assist in creating and implementing treatment plans
  • Inform patients about online support groups
  • Analyze MPN symptom assessment forms for signs of disease progression
  • Explain medical terminology
  • Provide compassionate, supportive care

Stories of Commitment to the MPN Community

Nurses who specialize in MPN care are passionate, motivated, and dedicated to the MPN patient community.

Watch how 2016 MPN Hero Erin Blackwell, RN, BSN, OCN®, takes care of her MPN patients.

Learn how 2015 MPN Hero Rebecca Claassen, RN, BSN, OCN®, has brought a greater understanding of MPNs to her nursing staff.

Nominate a Nurse as Your MPN Hero

If you know a nurse who has helped you or a loved one on an MPN journey, nominate him or her as your 2017 MPN Hero. To learn more about the MPN Heroes® Recognition Program, click here. Your heartfelt words of appreciation will mean so much to your MPN Hero and could inspire others to appreciate nurses in the MPN community.

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