Author: Voices of MPN
Learn why it’s important to recognize the impact of your MPN symptoms and to communicate with family, friends, and your Healthcare team to get the optimal care.
Find information to help you understand what effective communication looks like between a patient, doctor and Healthcare team. Learn how to make the most of your MPN healthcare visits.
MPN Peers Louise and Laurie share what they’ve learned on their MPN journeys. Find out how they became their own advocates and why it’s important to connect with others who know what they’re going through.
Get Involved With Blood Cancer Awareness Month 2021
You Have To Go To Know…Because Your MPN Isn’t Waiting
Meet 3 Peers from CHAMPN Connections
Learning the ABCs of Your CBC
The Importance of Scheduling—AND Keeping—Your MPN Healthcare Appointments
Rare Disease Day 2021
Making a Meaningful MPN Connection: Matt and Josh
Inside MPNs: What's Happening in Your Body?
Food for Thought: Anti-Inflammatory Eating
Author: Robyn M. Scherber, MD, MPH
Tips to Help You Make the Most of Your Conversations
Ten Reasons to Join the CHAMPN Connections Program
Celebrating 10 Years of Blood Cancer Awareness
Beyond the Basics: Information Every Patient With an MPN Should Know
Tracking My PV: Karen's Story
Finding an MPN Specialist: Aimee's Story
Keeping Up With the MPN Community From Home
Turning Up the Volume on MPN Education
What Every Patient With an MPN Should Know About the Spleen
Rare Reflections: MPNs Unmasked
How Can You Get Involved in Rare Disease Day 2020
Achieving Mindfulness With Your MPN
Newly Diagnosed: Advice From People Who’ve Been There
A Change in Diagnosis: Marilyn Finds Her New Normal
Denise: Investing in a Positive MPN Perspective: My MPN Journey
Author: Denise T.
Susan: Living a Life Well-Lived: My Essential Thrombocythemia Journey
Author: Susan W.
Bob: What I Learned on My Journey With Myelofibrosis
Author: Bob W.
MPN Symptoms: What Your Healthcare Team Needs to Know
Author: Amber Essenmacher, PA-C, MMS
What to Expect at an MPN Patient Education Event
My Experience With Polycythemia Vera and Cardiovascular Risk
Author: Matt W.
"Something So Rare" Documentary Sheds Light on Life With an MPN
Taja Connects With the MPN Community for the First Time
Nick Grapples With His MPN Diagnosis
A Facebook Live Chat Follow-up: Unanswered Questions
Author: Paul Larson, MSN-NP, AOCNP®
In Sickness and in Health: When Your Caregiver Is Your Life Partner
Dave Accepts the Challenge of Polycythemia Vera
Finding Strength in My Myelofibrosis Diagnosis
Author: Anand M.
Keeping Your MPN on Track: Three Tools That Can Help
Track, Trend, Talk: Three Important Ways to Take an Active Role in Your Care
Barbara Reveals Hidden Struggles in a Film About the Impact of MPNs
What I Experienced at an MPN Patient Meeting: 3 Stories
Be Your Own Advocate
Author: Alisa R.
Living in the Moment With Myelofibrosis
Recognizing PV Symptoms
Travel Tips for People With MPNs
The PV Tracker Tool: Taking Charge of Your Polycythemia Vera
When Polycythemia Vera Becomes Myelofibrosis
What Is Myelofibrosis?
Get Facts on Essential Thrombocythemia
Managing MPN Symptoms: How Tracking Can Help
MPN Landmark Survey Reveals Insights About Living With MPNs
Myelofibrosis and Your Spleen
What Is Polycythemia Vera? A Beginner's Guide
Why Making Connections Counts
7 Steps to Managing the Stress of an MPN
Tips for Managing MPN-Related Appetite Loss
Three Ways to Manage Your Energy Levels When You Have Myelofibrosis
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