Frequently Asked Questions
Click the
to expand the answers.
All of the data you enter, including your symptom scores and blood count results, are stored on the device you are using.
As a reminder,
- Choose the same device (and same Web browser) each time you access the tracking tool (eg, either your computer, or your tablet, or your phone). This is important because all of the information you input to track will be stored only on that device.*
- Do not delete your browser history or clear your cache; this will delete your previous entries. If you want to clear your browser history, please print or save a summary report from your results dashboard to save your previously reported information prior to deletion.
- Save reports often, especially if you are using a shared device, so that you can have a backup in case the browsing data is deleted.
*The information you enter into the tracking tool is not shared unless you use the email option prior to deletion.
You may use the MF Tracker Tool to score your MF-related symptoms on a weekly basis. However, you may prefer to score your symptoms more often if you are newly diagnosed or have recently experienced a change in treatment. Talk with your Healthcare Professional about documenting your blood counts and blood transfusions as often as they occur so that you and your Healthcare Professional can start to see any changes over time.
Myelofibrosis is a rare, chronic blood cancer. Healthcare Professionals sometimes call myelofibrosis a bone marrow cancer or blood cancer. Bone marrow is where blood cells are made. People with MF have a defect in their bone marrow that results in an abnormal production of blood cells, causing scar tissue to form.
MF can result from a progression of other bone marrow diseases or it can occur on its own. This is known as primary myelofibrosis.
To learn more about MF, visit: https://www.voicesofmpn.com/myelofibrosis-information.aspx
The MPN10 Symptom Score is a numerical value between 0 and 100 that is calculated by adding up the individual symptom scores you entered into the symptom tracking tool. While a higher Total Symptom Score (TSS) may indicate a more severe symptom burden, this number alone is not a full picture of your overall health. Speak with your Healthcare Professional if you have any questions or concerns about your MPN10 Symptom Score.
A blood transfusion is a common medical procedure that provides a person with donated blood through a narrow tube placed within a vein in the arm. For people with MF, periodic blood transfusions can help increase red blood cell count and reduce certain symptoms that may be related to anemia (low red blood cell count).
You might consider asking these or similar questions:
- How does my current disease management plan help control my symptoms?
- Are my blood counts associated with the symptoms I'm experiencing?
- What lifestyle changes can I make to help ease my MF-related symptoms?
The MF Tracker Tool helps you track aspects of your MF, so you are prepared for discussions with your Healthcare Professional and have a record of your disease status over time.
It’s important that you read the following to get the most from this tracker tool:
Choose the same device (and same Web browser) each time you access the tracker tool (eg, either your computer, or your tablet, or your phone). This is important because all of the information you input to track will be stored only on that device.*
Do not delete your browser history or clear your cache; this will delete your previous entries. If you want to clear your browser history, please print or save a summary report from your results dashboard to save your previously reported information prior to deletion.
You are ready to get started!
User Agreement
This MF Tracker Tool is provided by Incyte Corporation (“Incyte”).
By clicking “I AGREE” below, you agree to and accept the following terms governing your use of the MF Tracker Tool. By clicking “I AGREE” below, you also affirm your understanding and agreement to the terms set forth in the Legal Notices on the Voices of MPN website, which are incorporated into this agreement by reference.
THE MF TRACKER TOOL DOES NOT PROVIDE MEDICAL ADVICE. IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY, CALL YOUR DOCTOR OR 911 IMMEDIATELY. Your use of this tool and any information produced by this tool is at your own risk. The MF Tracker Tool and the information produced by the MF Tracker Tool is intended for informational and educational use only. The MF Tracker Tool and the website on which it is stored do not provide medical advice, do not provide a diagnosis or other recommendation for treatment, and are not a substitute for the professional judgment of a healthcare professional in the diagnosis and treatment of any person. The determination of the need for medical services and the types of health care to be provided to a patient are decisions that should be made only by a physician or other licensed healthcare provider. Always seek the advice of a physician or other qualified healthcare provider with any questions you have regarding a medical condition. Incyte accepts no responsibility for your reliance on information resulting from use of the MF Tracker Tool. You alone are responsible for the quality and accuracy of any data that you input into the MF Tracker Tool. You assume all risks associated with your data, including anyone’s reliance on its quality, accuracy, or reliability, or any disclosure by you of information in your data that makes you personally identifiable.
You should refrain from exporting data using the “Download or Share Your Results” feature of the MF Tracker Tool unless you are certain that the receiving email address or designated storage location is authorized, credible, and secure. By clicking “I AGREE” below, you acknowledge that anyone can access and view the data you entered into the MF Tracker Tool if your smartphone, tablet, computer, or other device on which you access the MF Tracker Tool is outside of your immediate control. You recognize and agree to fulfill your responsibility to protect the privacy of your data by keeping your device secure at all times and using all means possible to secure the data you input into the MF Tracker Tool.
The data you input into the MF Tracker Tool remains on your device at all times, unless and until you export your data or clear your cookies or browsing history. You are also free to stop using the MF Tracker Tool at any time. If you choose to clear your cookies or your browsing history on your device, the data you input into the MF Tracker Tool will also be irretrievably deleted.
You agree that Incyte may collect and collate a variety of information regarding the use of the MF Tracker Tool and may cause the MF Tracker Tool to communicate information about its operations to Incyte even if you are not connected to the Internet. Collection and management of this information is governed by Incyte’s Privacy Policy which is made part of this agreement. If you do not want Incyte to use data as described in its Privacy Policy, please do not use the MF Tracker Tool.
This tracking tool requires cookies; read the policy here.
*Your personal health information is not shared unless you decide to share it by using the email option.
WELCOME BACK
The MF Tracker Tool helps you track aspects of your MF, so you are prepared for discussions with your Healthcare Professional and have a record of your disease status over time.
It’s important that you read the following to get the most from this tracker tool:
Choose the same device (and same Web browser) each time you access the tracker tool (eg, either your computer, or your tablet, or your phone). This is important because all of the information you input to track will be stored only on that device.*
Do not delete your browser history or clear your cache; this will delete your previous entries. If you want to clear your browser history, please print or save a summary report from your results dashboard to save your previously reported information prior to deletion.
You are ready to get started!
This tracker tool requires cookies; read the policy here.
*Your personal health information is not shared unless you decide to share it by using the email option.