The MPN Heroes Recognition Program honors the people and organizations that have dedicated themselves to improving the lives of people with MPNs. The program focuses on the 3 "classical" MPNs—or what are known as Philadelphia chromosome–negative MPNs.
Created in the spirit of fostering community, the program recognizes patients, doctors, caregivers, advocates, and organizations that contribute to bringing understanding, compassion, and strength to the MPN community.
Incyte Corporation and CURE magazine sponsor the MPN Heroes Program. Our goal is to create as many opportunities as possible for people with MPNs to be heard and to be supported, so more solutions and treatment options will emerge.In appreciation
Thank you to all who participated in the 2015 MPN Heroes recognition program by nominating someone who has made a difference in MPN care. Nominations for 2015 Heroes Recognition Program are now closed.
The 2015 MPN Heroes will be recognized at the MPN Heroes Celebration Event, hosted by CURE Media Group. The event will take place on December 4, 2015 in Orlando, Florida.
An independent steering committee reviews the nominations and selects the recipients for recognition. The committee is made up of:
David Wallace is the publisher of PVReporter, a comprehensive resource website for myeloproliferative neoplasm (MPN) patients. The driving force is to help patients get up-to-speed as quickly as possible. By highlighting and organizing the great efforts of many organizations, individuals and contributors, PV Reporter can accelerate the steep learning curve for patients, while helping them make better decisions about their treatment plan.
After being diagnosed with polycythemia vera in 2009, David utilized social media to connect with "informed patients" and developed a better understanding of emerging treatment options. His philosophy on patient care is straightforward–"educating the patient is essential, so the patient can guide the physician to meet his or her needs." He values the "collective intelligence" as a vital tool for the empowered patient. A growing role as patient advocate continues to emerge as PV Reporter evolves.
Guadalupe R. Palos, RN, LMSW, DrPH
Dr. Palos is actively involved in community service activities advocating for cancer patients, caregivers, and their families. She believes collective communication between patients, families and healthcare professionals is the foundation for achieving high quality care. Dr. Palos is the Clinical Research Manager in the Office of Survivorship in the Division of Medical Affairs at The University of Texas M D Anderson Cancer Center (MDA). She is a nurse scientist as well as a licensed masters-prepared social worker and registered nurse.
Michelle Taymuree, PharmD, MBA
Michelle Taymuree received an undergraduate degree from the University of California at Berkeley, and a Doctorate of Pharmacy from the University of Maryland, Baltimore in 2008. She also earned a Masters of Business Administration from the University of Baltimore, Merrick School of Business in 2008.
Michelle is a member of the American Society of Health-System Pharmacists (ASHP), the California Society of Health-System Pharmacists (CSHP), and the California Pharmacists Association (CPhA). Michelle provides educational talks in the community, volunteers with East Bay College Fund and is a mentor at the Berkeley YMCA.
Ron Anderson, Patient Advocate
Diagnosed with polycythemia vera (PV) in 1998 and myelofibrosis (MF) in 2004. Ron underwent a splenectomy and stem cell transplant in 2008 and is in complete remission from MPN disease.
Ron currently leads the Los Angeles MPN support group. He speaks and presents to groups, individuals, and caregivers of the MPN community nationwide.
Diagnosed with invasive breast cancer in 1986, Kathy LaTour had a mastectomy and chemotherapy and has been active in the national survivor community ever since, speaking to survivor, medical and lay audiences about the need for psychosocial support. Ms. LaTour experienced a second diagnosis of breast cancer resulting in a second mastectomy in fall 2007. Her book, The Breast Cancer Companion, was published by William Morrow and Co. in 1993.
In 2001 she cofounded CURE magazine with Dr. Vinay Jain. Today she is editor-at-large of the publication, which is the largest direct to patient cancer magazine in the country. For her writing on cancer she has received numerous awards, including a first place from the Association of Health Care Journalists in 2011 for her article The Cost of Living, which looked at the late effects of radiation for long-term survivors.
In 2004 she debuted her one-woman show "One Mutant Cell," a humorous and poignant account of her journey through breast cancer, which she has performed more than 50 times for a variety of cancer events around the country.
She served for four years on the board of the National Coalition for Cancer Survivorship, and helped found Gilda's Club North Texas, now known as Cancer Support Community North Texas.She was also instrumental in founding The Bridge Breast Network in Dallas, a unique coalition of breast cancer survivors and area health care professionals who are providing diagnosis and treatment to uninsured women who may have breast cancer.
Dr. Laura C. Michaelis
Dr. Laura C. Michaelis specializes in clinical research and the care of individuals with chronic and acute leukemias. She is particularly interested in new drugs for myeloproliferative neoplasms and ways to engage the patient community in research and advocacy for orphan drugs. Prior to starting medical school, Dr. Michaelis worked for nine years as a newspaper and magazine reporter.
MPN Heroes is a program sponsored by Incyte Corporation and CURE magazine.
The MPN Heroes program recognizes dedication to individuals and the MPN community. Individuals or organizations can be nominated in 1 of 2 categories. Recipients will be selected by the steering committee's review of nominations for recognition. In Category A, up to 4 recognition plaques will be given to chosen recipients, and in Category B, up to 4 monetary donations to non-profit organizations and societies will be given as designated by the 4 recipients recognized in this category.
Criteria for nominations in either category are as follows:
Criteria: Category A: Commitment to the individual. Recognizing individuals who provide or demonstrate care, guidance, education, or support above and beyond the standard of care for one or more patients with MPNs. Types of work honored include demonstration of individual dedication by a nurse, doctor, or caregiver whose contributions to an individual with an MPN had an evident impact.
Criteria: Category B: Commitment to the broader MPN community. Recognizing leadership in developing services or programs addressing the needs of patients with MPNs, families, friends, caregivers, and medical professionals through advancing the science and medical understanding of MPNs, education, awareness, or approaches to care.
Types of work honored could include advocating for better care, outreach to underserved populations, activities at the grassroots level, promoting the patient's voice, providing MPN community leadership, creating awareness programs, innovative education materials, programs or events, disease management initiatives, research and science-based programs, media outreach, or campaigns.
Thank you to all who participated in the 2014 MPN Heroes Recognition program by nominating someone who has made a difference in MPN care.