Every year, the last day of February is Rare Disease Day, an annual observance dedicated to providing people with rare diseases a platform for advocacy and awareness. For patients with the rare, chronic blood cancers called myeloproliferative neoplasms (MPNs), this is an opportunity to find support and empowerment.

For many patients, it can be easy to gloss over their symptoms—attributing them to the natural aging process or even feeling as though they won’t be taken seriously. But for Rare Disease Day, Voices of MPN is encouraging people to talk openly and honestly with their healthcare team about the physical and emotional costs of living with MPN symptoms.

SPEAK UP ABOUT YOUR SYMPTOMS

MPNs are progressive diseases—meaning they can change and worsen—so it’s important to closely monitor and track the symptoms you are experiencing. In order to create a treatment plan that is personal to your MPN, your healthcare team relies on accurate information about how you’re feeling, including how long and intensely you’ve been experiencing your symptoms.

Make sure your healthcare team is aware of the symptoms you’re experiencing—monitor and track your symptoms and tell them about things that have changed at every MPN visit. This can help you get the care and treatment that you need to feel better and get back to the everyday activities you love.

JOIN US IN RAISING AWARENESS FOR MPNS

Join a Voices of MPN Facebook Live Event Throughout the Year

Hear directly from Incyte Oncology Clinical Nurse Educators during a live event. Ask questions, make connections, learn about MPN-related topics, and more!

REGISTER NOW 

Download the Voices of MPN Mobile Tracker App

Track your MPN symptoms today! Keep your healthcare team aware of how you feel so that you can have a productive appointment. Download the Voices of MPN Mobile Tracker app so you can keep track of your symptoms as you’re experiencing them, wherever you are.

START TRACKING